So much to be thankful for! Dad got to come home from the hospital today!!
God really heard yall's prayers because all of the doctors and nurses were amazed at how fast his lipase levels fell the last few days. For those of you like me who are not medical professionals, lipase is an enzyme that tells doctors just how inflamed the pancreas is. That is definitely a testimony to the power of prayer. AND I already shared with you about his nurse Mercy, well he also had a tech named Faith coming by his room to check on him while he was there. I love the little love letters God continues to send.
THANK YOU FOR PRAYING!! Here are some specific ways you can continue to join us in prayer:
1. Dad is having trouble eating. Please pray that God would heal his digestive tract so that he would be able to process the sustenance he needs to continue to fight the cancer and that food would be palatable for him.
2. Pray also for all of the doctor appointments next week. He is going to see his oncologist (pray for chemo!!) and gastroenterologist. He is also getting a scan on Wednesday to see how this new chemo protocol is impacting the cancer. Lots of big appointments next week.
3. Last but not least, continue to pray for complete healing!
Words simply don't express how thankful we are for each of you. God is using you in a mighty way for His Kingdom and in our family. Thank you.
Love,
Carol
"But as for me, it is good to be near God; I have made the Lord God my refuge, that I may tell of all your works." -Psalm 73:28
"And as for me, I know that my Redeemer lives, and at the last He will take His stand on the earth." -Job 19:25
background
Wednesday, April 24, 2013
Tuesday, April 23, 2013
More firsts!!
A lot of firsts have occurred since Saturday. Everything had gone very well after the
ERCP. At 1:00 am Sunday I had the
first pain during this Adventure.
It was a 6 or 7 on the 10 scale.
By 3:30 am I was asking the nurse what pain medication
they had prescribed for me. He
said it was morphine. That was a
first for me as well. Until that
moment I had not had any narcotics. It brought the pain down to a 2 or 3. Sunday morning the doctors figured out
that I had pancreatitis from the ERCP procedure. My lipase level came in at 9,000. Normal is 100 or less.
Pancreatitis is inflammation of the pancreas. Mine may have been
initiated by irritation of the pancreatic duct. At this point I obviously do not get along with the various
duct systems in my body. I guess
the next to go will be my tear ducts (just a guess).
There is no treatment for pancreatitis. I basically have to not eat or drink until
it settles down. Monday morning
the lipase level had fallen to 3,000.
My pain was under control with the morphine. So things were looking good. This morning my lipase level was 900. I am still at Baylor Grapevine and of
course did not get my Chemo therapy.
That may occur next Tuesday, but we are taking one thing at a time. I may be discharged tomorrow. I am trying to eat some food and drink
some liquids today to see how my pancreas reacts. Prayers for me to respond well over the next few days would
be appreciated.
Cathy, Jan’s lifelong friend, drove in from Midland
Sunday night to help out. She is
such a blessing. It is always
hilarious when the two of them get together. There have been many visitors since I have been in the
hospital. Melanie and Cindy came
by and we had a great time sharing and then a great prayer time. Jeff came by and we talked for a long
time after which he prayed for me and my family. Yesterday Lindy and Lindsey came by and again it was a
special time of sharing and prayer.
As I write this Melanie and Cathy are here and I am eating Jello and
broth.
Well everyone has gone home except Jan and
Julie. The few clear liquids that
I have tried have not gone well.
Though the pancreatic pain is not made worse by eating, the squiggly
guts reaction increases to a very uncomfortable level when I eat. The GI doctor was here and has prescribed
a medication to try to help this response so I can eat my diet. Pray this works so that I can be
discharged soon.
We were uplifted to hear the news that my brother
and sister-in-law are coming in this weekend. This will be a blessing to us and Jan’s mother. Carol is arriving Friday and has Monday
off so she will be able to stay a little longer.
The tough times are the times that try our
soul. Two verses that Melanie that
gave to me today fit this situation I currently find myself in on this
Adventure. Ephesians 3:17b-19 And I pray that you, being rooted and
established in love, may have power, together with all the Lord’s holy people,
to grasp how wide and long and high and deep is the love of Christ, and to know
this love that surpasses knowledge – that you may be filled to the measure of
all the fullness of God. and Psalm 62:1-2 Truly my soul finds rest in God; my salvation comes from Him. Truly He is my rock and my salvation;
He is my fortress, I will never be shaken.
Please continue to pray for me and my family in the
next few days. God continues to
send me love letters at the perfect time so I know He will see us through this
Adventure like He has all the rest.
Thank
you,
Saturday, April 20, 2013
There's a first time for everything...
I
think I have learned a lesson. Things
move too fast to do an update weeks apart.
So I will attempt to write my updates more frequently. The big news this time is that I had my second
ambulance ride in my life and I was admitted to a hospital for the first time
in my life. This all
started Friday morning as I got out of bed.
I was very weak and light headed.
I had been feeling punk most of Thursday and for the first time I could
not bring myself to eat dinner Thursday night.
I had a good night, but like I said earlier, I was weak and lightheaded
getting out of bed. That rapidly turned
into profuse sweating and difficulty doing small tasks with a fever of 102. I looked so bad
Carol called 911 to get a Coppell ambulance dispatched to our house. While Carol was getting the EMTs, Jan was doing
an excellent job taking care of me in spite of my belligerence, caused by my
weakened state. The EMTs arrived
very quickly since they are four blocks from our house and assessed the
situation. It was decided by all that
the emergency room was the next stop. I
arrived very quickly to the emergency room and the course of treatment was to
start high-powered antibiotics since the likelihood that I had an infection was
very high. After many tests and
consultations I was admitted to the hospital (did I say this is the first time
I have ever been admitted to a hospital, although with Julie I have spent many
nights and days in hospitals) to continue the antibiotics and consult with four
doctors (a Gastroenterologist, the hospital doctor, an infectious disease specialist, and an Oncologist). The
consensus was that I needed another ERCP (Endoscopic Retrograde
Cholangiopancreatography) to clear my bile duct stent and possibly place an
additional stent in. The ERCP procedure took
place at 9:00 am this morning without incident.
All last night the song One Thing Remains by Kristian Stanfill
was running through my head. God is so
great to provide love letters at the perfect time to give us comfort and
hope. The Gastroenterologist cleaned me
out and put a longer stent inside the first one to handle some incursions
further up the bile duct. That was
probably the source of the infection and my feeling so lousy Thursday. I am not sure when I will be discharged but
everything is back to normal.
A real blessing for us was the fact that Carol came in Thursday for a visit. She was able to take care of Julie so Jan could stay with me at the hospital. She wrote the most wonderful e-mail this morning that I wanted to share with everyone. I copied the text below:
A real blessing for us was the fact that Carol came in Thursday for a visit. She was able to take care of Julie so Jan could stay with me at the hospital. She wrote the most wonderful e-mail this morning that I wanted to share with everyone. I copied the text below:
Good morning
dear ones.
What a
difficult week it has been for so many across this country. As I sit here and
think about all the pain and brokenness the only words that come to mind are
"Come swiftly Lord, Jesus"! Come to bring ultimate healing and
restoration to these people and this land. A good friend of mine sent a
powerful Bible verse to our family yesterday. I want to share it with you and
pray that it brings you hope and peace as it does to me. Jesus is talking to
his disciples right before he is taken to be crucified. He knew their world was
about to be turned upside down and that they would need to exercise great faith
in the coming days and years. He says, "I have said these things to
you, that in me you may have peace. In the world you will have tribulation.
But take heart, I have overcome the world." (John 16:33) The enemy was
defeated on the cross and has no power over those who have transferred the
leadership of their lives to Jesus. Even though this world is still broken, we
can have peace because He has overcome.
God has given
us great faith and peace in this crazy last 24 hours! Dad is still at the
hospital and is about to go in to have an ERCP procedure to take a look at,
clean out, and possibly reinforce the stent he had put in back in October.
This stent is what is keeping his bile duct operational and they suspect
it may be what is causing the potential infection. Last night
when I was with dad, I asked him what he thought about the procedure (it is not
the most fun process). He said that whatever the Lord willed would be fine with
him. :) He is exercising the faith God has given Him and has such peace in it
all. He looks really good and definitely still has his sense of humor!
Mom stayed up
there with him last night, which left Julie and I to have a sister slumber
party at the house! She did great! She slept most of the night and didn't have
any big seizures!! Such a HUGE praise as seizures are no fun to deal with by
yourself.
One cool
"love letter" from God I want to share with you. Last night when the
nurses were changing shifts for the night shift, the new nurse came in and
introduced herself to us. Her name was Mercy. It felt really good to leave last
night knowing that Mercy was watching over that hospital room. Such
a precious reminder...
I am grateful for
each of you. I cannot say it enough, thank you thank you thank you for walking
this adventure with us. You are a blessing to us and we love you!! I hope to
send an update later today to let you guys know how the procedure goes and
hopefully we will know more about how long they want him to stay at the
hospital.
-C
Now
it is time to catch everyone up on the events of the past few weeks. My high
school friend Ralph came down for a visit a couple weekends ago. It was
awesome. It was like no time had passed since we were
last together. It was a fun time catching up and talking about past
adventures. It was hard for Ralph to
leave Dallas, not because I am such a good friend but because American Airlines
could not get his plane off the ground.
He finally started back to Iowa after a terminal change and I think a
plane exchange due to mechanical problems.
He took off from DFW at the time he was supposed to have arrived in Iowa.
My
youngest daughter, Catherine, came in for a weekend visit after Ralph’s
visit. It was a fun weekend without any
crisis adventures. The weather was
gorgeous and we took full advantage of it.
Catherine and I had some special time together going to The Village
Church for Sunday service. It was a
great service and wonderful message. We
then went to the church service at Silverado (the place where Jan’s mom lives). It was great having the whole family (we
missed Carol) visiting Meme and worshiping the Lord.
I
was supposed to have my fourth round of the second protocol Monday the 15th
of April. We showed up at the Oncologist
but once again my labs prevented me from proceeding with the course. The infusion was rescheduled for this coming
Monday. That may be delayed as well if I
am still in the hospital. Prayers for discharge Sunday and good labs Monday
morning are in order. I have experienced
God’s love for me throughout this Adventure and will continue to desire His
perfect timing for the next steps going forward.
If
you were to review the blog from the beginning it is awesome to see how God has
orchestrated the Adventure so far. It is
neat to have this record to remind one’s self of how gloriously God has walked
with me and my family during this Adventure.
Your prayers have had much to do with that provision.
Thank you,
Price
Sunday, March 31, 2013
Waiting Rooms
Written Wednesday 3-20-2013
Sunday 3-31-2013
For some reason, which I cannot elucidate,
I am just now getting back to the Update I started eleven days ago. God
continues to amaze me with His provision. During this Easter season His
greatest provision for everyone is, of course, being proclaimed every where.
The sacrifice that Jesus made so that all our transgressions and human failings,
that separate us from God, could be forever atoned for was God’s greatest act of
reaching out to us to bring us back to Him. What an awesome
God!
I am officially retired from Oncor after
thirty eight years with them. It feels good and sad all at the same time.
There was a wonderful retirement celebration on March 18th at the Fairmont Hotel
in downtown Dallas. It was great seeing everyone and reminiscing about my
career but what was especially nice was that Jan, Julie, Carol, and Catherine
could be there and meet and talk with everyone I had worked with at Oncor. Carl
Brown made a very special wall hanging that had my favorite verse (Job 19:25)
and a wooden cross on it with places for my employees to write very special
messages on. I was also given many notes and cards and a very generous gift of
money. Thanks to everyone who participated and for the wonderful mementoes and
gifts.
I know I am retired because my BlackBerry
is dead (literally) and my work computer has been relinquished to Oncor. Those
were the final ties to work. So far I have not missed them and I seriously
think that I never will. That chapter of my life is closed. On to other
endeavors. I am staying busy and as I stated earlier, God continues to amaze me
with His provision for my life. We get notes and letters that are so very dear
and confirm that God is at work in our lives on a daily basis. Carol has been
with us in Dallas since Thursday and will be leaving tomorrow. Ralph Webb, a
great friend from high school, will arrive in Dallas Thursday. It has been
thirty years since last we met. That will be a special visit. Catherine will
be in town the next weekend. We went to Easter Service Saturday afternoon at
Matt Chandler’s church (The Village Church Flower Mound) and reconnected with
some dear friends. It was as if God orchestrated the whole affair. It was so
awesome to attend the service as a family and so much fun to visit and catch up
with Deb and Mike and their family.
I start my fourth round of the second
protocol Tuesday, if the lab values work out. I am ready for the next round
because God is with me and His provision is perfect. The Adventure continues.
As events unfold I will be continuing the Updates. Thank you for your continued
prayers and support. Pray as God leads for me and my family.
Thank you
Price
As
I finally start my third round of the second protocol of Chemo, which means I am
tied to the needles, tubes, bags and pumps for five or more hours today, there
is time to contemplate the message that God has placed on my mind and to
complete another update. I am truly thankful that the lab work came back with
all the values in range to allow for Chemo today. The verse that I am
contemplating is Jeremiah 29:10-13 For thus says the Lord, “When seventy
years have been completed for Babylon, I will visit you and fulfill My good word
to you, to bring you back to this place.” “For I know the plans that I have for
you,” declares the Lord, “plans for welfare and not for calamity to give you a
future and a hope.” “Then you will call upon Me and come and pray to Me, and I
will listen to you.” “And you will seek Me and find Me, when you search for Me
with all your heart.” The crux of the message is that the Israelites will
be in captivity in Babylon for seventy years because they rejected God. After
the seventy year waiting period God will restore the Israelite Nation and
restore their spiritual foundation.
Since I am again in the Waiting Room related to my cancer I
can draw some parallels with the Jeremiah verses. I have identified two kinds
of Waiting Rooms that apply to my situation. The first is the temporal Waiting
Room. This is the one driven by the physical world. I am in that room based on
the doctors and course of treatment they chose for me. The end of this Waiting
Room experience will be the next CT scan. That is the measure of the success of
the treatments on my cancer. The second is the spiritual Waiting Room. I will
always be in the spiritual Waiting Room with God if I approach Him in reverence,
unlike the Israelite Nation which spiritually separated themselves from God
during the Babylon captivity. But, even in that spiritual separation God had
plans for welfare and a future and a hope for the Israelites. So, God always
had a plan for restoration of the Israelites. In my situation I know that God
is with me in both the temporal Waiting Room and the spiritual Waiting Room. I
know the plans He has for me, in a large part because I seek Him daily and pray
to Him as often as I can. I know He is with me since He has answered my prayers
and continues to do so. While I will be in the temporal Waiting Room
periodically throughout my treatment I will always strive to remain in God’s
spiritual Waiting Room. In either case He is with me. Since He is there with
me in both waiting places, I can take comfort that He has plans for welfare and
a future and a hope for me and that I can call on Him and He will listen. That
understanding along with the Unshakable Faith and Unstoppable Joy He has
provided allows me to face this Adventure with full confidence.
Monday, March 11, 2013
Report
I attempted to start my third round of the second protocol of Chemo today. For the first time in all the infusions I have had, my lab levels prevented me from having Chemo today. Specifically, my White Blood Cell Count and another value called the Absolute Neutrophil Count were too low to allow for Chemotherapy. I am now rescheduled for infusion on March 20th. That will give my body time to recover and build my defenses up to satisfactory levels. As I have stated in the past, God’s timing is perfect so I am not disappointed, just curious to see what God has in mind. Watching Him work through all the red tape that is involved in Chemotherapy is part of the joy I receive knowing He is right beside me at every step I take on this Adventure. I was going to use the time while hooked up to the Chemo stuff today to complete this update. Instead, I am at home contemplating the message that God has placed on my mind and to complete the update.
Before I get into the meat of the message, I need to give some context to the verse that God gave me for this update. The situation described in the Bible is that Jesus encounters a man filled with unclean spirits who are named Legion. The man was completely uncontrollable and very tormented. (I am leaving out some of the really neat parts where the Legion recognize Jesus as one who could torment them.) Anyway, Jesus gives them permission to leave the man and enter a herd of swine. All 2,000 of the swine immediately run down a steep bank and are drowned in the sea. The herdsmen reported what had happened to everyone they could find and a crowd came to Jesus. As they approached, they saw the tormented man sitting down, clothed and in his right mind and they became frightened. (The world often misses the point of Jesus.) The crowd entreated Jesus to leave and as Jesus was getting into the boat the man who had been demon-possessed asked to go with Jesus. Jesus did not let him. The verse picks up at that point. Mark 5:19 And He did not let him, but He said to him, “Go home to your people and report to them what great things the Lord has done for you, and how He had mercy on you.” Verse 20 states that he did as Jesus asked and everyone marveled. It is ironic that when in the presence of Jesus some people of the world become frightened but when they hear from someone who was touched by Jesus they marvel.
I believe the reason God wanted me to share this verse in relation to my journey is to let everyone know that I am to follow the example of the tormented man when he was told by Jesus to tell the people what had happened. I feel like I am supposed to share my Adventure with Jesus and God as it happens. Doing so helps the people who are praying for my healing to maintain their diligence, it lets others know that Jesus is working in my life in a very powerful way, and it provides insight into Jesus in a way that is non-threatening to those who have not experienced the saving grace that Jesus provides.
It is important for me to report what great things the Lord has done for me and how he had mercy on me. The journey is not over and I pray that I am up to the task of reporting when my healing occurs. The accuser will not appreciate the powerful message that will be reported at that time and the total defeat of him it represents. The other hindrance I foresee to my reporting is the proclivity of us to forget the great things God does for us in a surprisingly short time. I am committed to not fall into that trap and maintain my reporting throughout the Adventure and after I am healed.
As far as how I am doing on the new protocol, I would have to say the second round was easier than the first. The side effects were about the same but they lasted for a shorter period of time or I got used to them faster. I am not sure which of those two statements are what actually happened. When I get the third round it may give me the answer to that quandary. For sure, God has been continually with me in the current protocol just like He was in the first protocol. I am doing well and have not suffered some of the more devastating effects of Chemotherapy. Carol is in town and she went with me this morning to Chemo. Catherine will be in town along with Carol for my retirement next weekend. I am blessed to have such a wonderful, supportive wife and three amazing daughters. Thank you for all the support, encouragement, thoughtful notes, cards, gifts, and kindnesses that have been poured out on my family and me during this journey. Please continue to pray, as you are lead by God, for my family and me all the way to the end of this Adventure.
Thank you,
Price
PS From Jan
Before I get into the meat of the message, I need to give some context to the verse that God gave me for this update. The situation described in the Bible is that Jesus encounters a man filled with unclean spirits who are named Legion. The man was completely uncontrollable and very tormented. (I am leaving out some of the really neat parts where the Legion recognize Jesus as one who could torment them.) Anyway, Jesus gives them permission to leave the man and enter a herd of swine. All 2,000 of the swine immediately run down a steep bank and are drowned in the sea. The herdsmen reported what had happened to everyone they could find and a crowd came to Jesus. As they approached, they saw the tormented man sitting down, clothed and in his right mind and they became frightened. (The world often misses the point of Jesus.) The crowd entreated Jesus to leave and as Jesus was getting into the boat the man who had been demon-possessed asked to go with Jesus. Jesus did not let him. The verse picks up at that point. Mark 5:19 And He did not let him, but He said to him, “Go home to your people and report to them what great things the Lord has done for you, and how He had mercy on you.” Verse 20 states that he did as Jesus asked and everyone marveled. It is ironic that when in the presence of Jesus some people of the world become frightened but when they hear from someone who was touched by Jesus they marvel.
I believe the reason God wanted me to share this verse in relation to my journey is to let everyone know that I am to follow the example of the tormented man when he was told by Jesus to tell the people what had happened. I feel like I am supposed to share my Adventure with Jesus and God as it happens. Doing so helps the people who are praying for my healing to maintain their diligence, it lets others know that Jesus is working in my life in a very powerful way, and it provides insight into Jesus in a way that is non-threatening to those who have not experienced the saving grace that Jesus provides.
It is important for me to report what great things the Lord has done for me and how he had mercy on me. The journey is not over and I pray that I am up to the task of reporting when my healing occurs. The accuser will not appreciate the powerful message that will be reported at that time and the total defeat of him it represents. The other hindrance I foresee to my reporting is the proclivity of us to forget the great things God does for us in a surprisingly short time. I am committed to not fall into that trap and maintain my reporting throughout the Adventure and after I am healed.
As far as how I am doing on the new protocol, I would have to say the second round was easier than the first. The side effects were about the same but they lasted for a shorter period of time or I got used to them faster. I am not sure which of those two statements are what actually happened. When I get the third round it may give me the answer to that quandary. For sure, God has been continually with me in the current protocol just like He was in the first protocol. I am doing well and have not suffered some of the more devastating effects of Chemotherapy. Carol is in town and she went with me this morning to Chemo. Catherine will be in town along with Carol for my retirement next weekend. I am blessed to have such a wonderful, supportive wife and three amazing daughters. Thank you for all the support, encouragement, thoughtful notes, cards, gifts, and kindnesses that have been poured out on my family and me during this journey. Please continue to pray, as you are lead by God, for my family and me all the way to the end of this Adventure.
Thank you,
Price
PS From Jan
I am prompted to report about two special pastors that have been used of God to minister to us during this time. First, we were so blessed, a few weeks after Christmas, to go up to Aubrey Texas to attend church at Oak Grove United Methodist Church. This is a special church because Sunday morning worship takes place in a beautifully renovated building that dates back to the 1800’s. But it was special to us because of the church’s pastor, “Reverend Liz”. We first met Liz approximately 20 years ago when she was Julie’s teacher. She is a gifted teacher and our time with her was very special. This includes the time she came with our family to Colorado on one Spring Break. It was a very exciting day when, during that trip, Liz and I took Carol and Catherine up chair lift #2 at Loveland Ski Basin. A whiteout blizzard came upon us as we got off the lift. We found out later they closed the lift right after we got on. Liz and I got our little snow train of 2 brave little girls down the mountain in one piece with only a touch of frost bite on the tip of Carol’s ear, where it had wiggled out from under her hat. After 20 years in education Liz became a student again and then became a pastor, now with her own church. We were blessed to hear her sermon and see her sweet congregation. We were also blessed to see Price’s name in the church bulletin asking for prayers, when she did not even know we were coming.
We became aware of another special Dallas pastor from picking up a book in
the doctor’s office. The book is My Stronghold: A Pastor’s Battle with
Cancer and Doubts by Joe Fornear. I share this resource because it is a
great book to give to someone fighting cancer. He and his wife have another
book available called In His Grip, Meditations with the Great
Physician. These books can be obtained from Stronghold Ministry, PO BOX
38478, Dallas, Texas 75238 or at www.mystronghold.org.
I close with a picture of Julie and Price taken at Silverado Senior Living
Center where we go to church with my mother. Our little service is conducted by Tim
and Marilyn from Valley View Baptist Church. We are blessed by them as
well!
Wednesday, February 13, 2013
Second Protocol Begins
The first round of the second set of Chemo drugs is in the “bag” and in me. I definitely felt this set of drugs as they were going in, unlike the first set. The most noticeable effect was abdominal cramping. That was dispatch with a dose atropine. That and steroids are now my drugs of choice. As I write this update the cramping as well as the other side effects I experienced during the infusion are things of the past. It will take a day or two to see what additional impact this Chemo might have on me. Tonight, as I write this update, I have not experienced any impacts. This next set of Chemo drugs came with a twenty page manual covering the infusion pump that I wear home for two days. Thursday at noon they will take it off. While that may be daunting to some people, as an engineer it is downright exciting to figure out how it works. Y’all know how I love to read manuals so I get two things I love to do with a take home, do it yourself infusion pump.
There are other warnings and obligations that occur with a take home, do it yourself infusion pump. There is a bag of stuff labeled “Chemotherapy Spill Clean-up Kit”. It contains such items as a Scoop and Scraper, a 21g Green-Z® Solidifier Pouch, a 12”x12” Super Barrier Zorb Sheet, and a 33”x40” Red Biohazard Bag. I can be my own HAZMAT team if something comes loose and the Chemo drug gets out, instead of going into my body. I find it somewhat funny that I am “HAZMATing” my body. Additionally, while I am cleaning up the chemical spill I am to call 911 because the port that is directly tied to the vein leading to my heart would have been compromised. I only hope I have enough time to clean up the spill before the EMT team takes me to the Emergency Room. That would be another Robertson Adventure for sure. You have to admit it is hilarious to think of the sight of me in the Open Back Gown that comes in the kit cleaning up the spill as the EMT cadre come in the door. I would have to be the one to clean the spill up since I was also told by the infusion nurse today that I was to flush the toilet twice when I was through doing my thing since that is how the Chemo makes its escape from my body. If flushing the toilet properly is a concern for the safety of my family from the bad effects of this round of Chemo then how could I ask Jan to risk her life to clean up my HAZMAT spill? Love can only go so far. I make the mess so I clean it up. The EMT responders will have to wait to take me to the Emergency Room.
Additionally the drugs in this round have a seven page fact sheet with four of those pages listing, in three columns, possible Side Effects, How to Minimize Side Effects, and Possible Treatments. As an example one of the Side Effects is Alopecia, also known as hair loss. The How to Minimize Side Effect column starts off with “Alopecia cannot be prevented but here are some tips to help you cope with your hair loss.”. The first tip is “Use a soft hairbrush.”. There is no Possible Treatments listed since they already informed us that hair loss cannot be prevented. I know that it may not be cool to make light of the myriad of things that have to be considered with Chemotherapy but I have to find humor in all of this as I go through this next phase of treatments. I certainly understand how all of this is not funny to those fellow cancer patients. I guess I just have a different viewpoint than most people.
This last weekend had both girls in town and my brother and his wife. It was a great weekend filled with lots of fun things to do. It was a bit sad as everyone left Sunday. Those are indeed precious moments. Tonight, Melanie and Jeff brought more food over. They said it was their favorite dish. I cannot wait to see what it will taste like. I have gotten used to the metal taste so it has almost become normal to me.
Since I referred to food above, let me finish this update with some more don'ts that I was informed of about one of the drugs I am taking. It contains platinum which is ironic since everything taste like metal! It also causes ice and cold to be the enemy. Cold foods and drinks, cold air to the lungs, and cold to the hands all cause negative side effects. That means to me that I will eat and drink my tepid food while breathing warm air from the steam kettle and wearing ski gloves. Another hilarious sight if I do say so myself.
As always please continue to support us in all the ways God ordains but most especially in prayer.
Thank you,
Price
There are other warnings and obligations that occur with a take home, do it yourself infusion pump. There is a bag of stuff labeled “Chemotherapy Spill Clean-up Kit”. It contains such items as a Scoop and Scraper, a 21g Green-Z® Solidifier Pouch, a 12”x12” Super Barrier Zorb Sheet, and a 33”x40” Red Biohazard Bag. I can be my own HAZMAT team if something comes loose and the Chemo drug gets out, instead of going into my body. I find it somewhat funny that I am “HAZMATing” my body. Additionally, while I am cleaning up the chemical spill I am to call 911 because the port that is directly tied to the vein leading to my heart would have been compromised. I only hope I have enough time to clean up the spill before the EMT team takes me to the Emergency Room. That would be another Robertson Adventure for sure. You have to admit it is hilarious to think of the sight of me in the Open Back Gown that comes in the kit cleaning up the spill as the EMT cadre come in the door. I would have to be the one to clean the spill up since I was also told by the infusion nurse today that I was to flush the toilet twice when I was through doing my thing since that is how the Chemo makes its escape from my body. If flushing the toilet properly is a concern for the safety of my family from the bad effects of this round of Chemo then how could I ask Jan to risk her life to clean up my HAZMAT spill? Love can only go so far. I make the mess so I clean it up. The EMT responders will have to wait to take me to the Emergency Room.
Additionally the drugs in this round have a seven page fact sheet with four of those pages listing, in three columns, possible Side Effects, How to Minimize Side Effects, and Possible Treatments. As an example one of the Side Effects is Alopecia, also known as hair loss. The How to Minimize Side Effect column starts off with “Alopecia cannot be prevented but here are some tips to help you cope with your hair loss.”. The first tip is “Use a soft hairbrush.”. There is no Possible Treatments listed since they already informed us that hair loss cannot be prevented. I know that it may not be cool to make light of the myriad of things that have to be considered with Chemotherapy but I have to find humor in all of this as I go through this next phase of treatments. I certainly understand how all of this is not funny to those fellow cancer patients. I guess I just have a different viewpoint than most people.
This last weekend had both girls in town and my brother and his wife. It was a great weekend filled with lots of fun things to do. It was a bit sad as everyone left Sunday. Those are indeed precious moments. Tonight, Melanie and Jeff brought more food over. They said it was their favorite dish. I cannot wait to see what it will taste like. I have gotten used to the metal taste so it has almost become normal to me.
Since I referred to food above, let me finish this update with some more don'ts that I was informed of about one of the drugs I am taking. It contains platinum which is ironic since everything taste like metal! It also causes ice and cold to be the enemy. Cold foods and drinks, cold air to the lungs, and cold to the hands all cause negative side effects. That means to me that I will eat and drink my tepid food while breathing warm air from the steam kettle and wearing ski gloves. Another hilarious sight if I do say so myself.
As always please continue to support us in all the ways God ordains but most especially in prayer.
Thank you,
Price
Thursday, February 7, 2013
God Is At Work At All Times & In All Things
While I do not have a miracle healing the results from the CT
Scan show the tumors are less dense and my cancer “marker” (from a blood sample)
has continued to drop. The lesser density means the tumors are dying leaving
behind dead cells. Dr. Strauss decided it is time to change chemotherapy
protocols, so I start next week with the protocol he first suggested way back
when all this started, with some changes based on recent studies. It is great
news and more evidence that God is at work that the doctor thinks my liver and
kidneys can now handle the regimen. I will start this next Tuesday. The
Adventure continues and we are back in the Waiting Room (Check out the Blog if
The Adventure and the Waiting Room references do not make sense).
Julie was a super Shadow Soldier while Dr. Strauss was with us. She has had a
rough three days with no sleep and a lot of seizures. The seizures held off
while we were at the doctors and started back when we got in the car. She is
doing better tonight but she is still having seizures.
When I reflect back on the last four months it takes my
breath away. I have experienced the closest walk of Faith in my entire life and
feel closer to God because of it. That is the effect that “trials” have had in
my life. When life is easy and the sun is shining, as they say, we often look
up to see the sky, not to worship the Lord. Why does it take troubling
circumstances for us to look for God? I know I am not the first to ask that
question but I can testify that I fell into that trap more than once in my 62
years of life. I will relate a funny story that kind of illustrates my point.
I was walking with a fellow worker reading a message on my BlackBerry near the
old Republic building happy as a lark and enjoying the day. As I was not fully
aware of my surroundings, I failed to notice that one of the iron covers that
surround the trees in the front of the building had been removed. You are
probably ahead of me with this already because it was just like some of those
You Tube videos we all laugh over. Yes, I stepped where the grate should have
been and proceeded to do a somersault onto the sidewalk. In the process I
kicked a package of cigarettes out of the hand of a woman walking the opposite
way with my foot. I was flat on my back looking at the sky asking the woman if
she was alright while she was staring down at me asking if I was alright. I
believe that situation is why the word humbling was created. She was fine and I
was fine but it took a pothole for me to look up at the sky, think about others,
and stop perseverating on the BlackBerry. You might ask if I learned my lesson
and stopped reading BlackBerry messages while walking. Sadly I did not, but
that also illustrates my point about how quickly we go back to the status quo
with God.
My foundation is Christ. My worship is for God. My wisdom is
from the indwelling Holy Spirit. God has sustained me and He will heal me. The
verses in 2 Corinthians 1:20-22 For as many as may be the promises of God, in
Him they are yes; wherefore also by Him is our Amen to the Glory of God through
us. Now He who establishes us with you in Christ and anointed us is God, who
also sealed us and gave us the Spirit in our hearts as a pledge. We are in
the Waiting Room again but we are not alone and we are not dismayed. The
Adventure continues and we are refreshed because we are not alone. We have God
and we have all those who are praying for us. Please keep praying and know that
your prayers make a difference. Thank you, Price
Subscribe to:
Posts (Atom)
